Post # 1
I was active in this community when I was planning my wedding but have decided to create a new user name for our ttc journey. Some back ground. We have been trying to conceive for about 9 months. My husband suffers from low testosterone and has been taking Androgel for about 2 years and was receiving shots prior to that for about 1 year. After a lot of research and attempts to figure out why we were not conceiving my husband discovered that a side effect of testosterone replacement is low sperm count. He recently had his sperm count and motility checked and we found out today that he is not making any sperm. He is going to stop the testosterone replacement and he will stop drinking completely and then in three months they are going to check again.
We are obviously quite upset.
I am wondering if anyone else has gone trough this. Does anyone know what the chances are of recovering and producing sperm again in this situation? Also, does anyone know of any good supplements or things that he could try to get his counts increased? I am open to any suggestions and also to any stories of similar experiences.
Post # 3
@MrsHS: I am sorry you are dealing with this!! My DH had low morphology and took GNC’s Fertility Blend for Men. Maybe that will help count too? You should research it! Hope this helps!
Post # 4
I have no experience with this but I just wanted you to know that I am praying for you guys! Don’t give up!!! there are so many ways to get over this hurdle.
Post # 5
My dh has low testosterone. He was prescribed arimidex to help increase it. The urologist told us that testosterome would just tell the body not to produce sperm.
Post # 6
No advice here really. I’m really sorry to hear about your DH, although I have read stories like yours that ended in a BFP if that’s any comfort. My DH also got some pretty bad SA results, so he recently started Fertility Blend for Men. Hope that helps.
Post # 7
my dh has low testosterone (i believe his levels were around 200) and has secondary hypogonadism (his testicles work fine, his brain isn’t telling them to produce more test)…one of the first doctors he went to prescribed him androgel, but he one took it one time because i had looked it up and found a lot of information about how testoserone supplementation can cause the body to stop making sperm. we saw a great urologist in september who put my dh on clomid (25 mg every other day)…this increases the lh/fsh hormones to tell the body to produce more testosterone without actually supplementing. after 1 month, his testosterone doubled to over 400….he has another checkup in may to check his levels again. it took a few months for symptoms to start to improve, but he is feeling better now!
from what i’ve researched, men can bounce back after androgel, it just takes time. he may need something like clomid as well. i would go to a urologist that specializes in low testosterone/hypogonadism and be prepared with lots of questions. tell him you are TTC and that testosterone supplementation is not an option.
we are not “officially” ttc, but we are not trying to prevent either =)…i’m currently in the 2ww so i’ll keep you updated if anything happens. it always is nice to hear success stories so you don’t get too upset over everything that’s going on. i have seen some stories of men with low t or men who were on androgel getting their wives pregnant…it only takes one swimmer!!!
Post # 8
My DH has low testosterone/low sperm count due to, what the doctor’s suspect, is a blockage from his brain (very rare, especially at his age, 25). He was prescribed Androgel to keep his energy up from the low testosterone and that made the sperm count EVEN worse, basically next to nothing. Not knowing this, I did some research after TTCing for 4 months and discovered what the side effects of the Androgel were. When my DH mentioned this to the doctor, the doctor had told him that it is reversible and not to worry. Easy for him to say! He gave us advice that we jumped on, and that was to wait a minimum of 7 days to BD around the time of ovulation for the best “sperm results”. After 2 months of being off the Androgel and waiting 7 days to BD around ovulation (OPK’s became very useful!), we finally got our BFP!! Though I know it’s different for everyone, and my DH wasn’t on the Androgel for more than 4 months, but getting pregnant is possible. There are some sites as well that talk about how a healthy diet can help produce more sperm, so that is also something my DH stuck to and perhaps that helped as well. Also, be prepared that the urologist will say that there are no testosterone supplements that do not guarantee low sperm count as that’s what was told to my DH. So he got off the Androgel during TTC and a month or so after our BFP (around the time we figured it would be a viable preganacy), he got back on it for the other health benefits it provides (more energy, less tired, less weight/muscle loss).
I wish you the very best of luck and to remain positive, which I know is really hard to do in this situation. It’s a tough situation, but it can be reversible:)
Post # 9
My best friend went through this. Her husband was producing sperm counts in the teens — when they should be in the millions. Guess what? She just had TWINS! A boy and a girl.
They should be able to do a biopsy to retrieve sperm (its invasive FYI.. sorry hubby!) but they did that and did IVF. It’s not “ideal” but they have 2 happy gorgeous babies and the struggle was worth it. Good luck!
Post # 10
Thank you so much for the advice everyone. I am definitely going to look up the fertility blend for men. He is stopping the Androgel and then the doctor wants to wait for three months and then check his counts again. I would rather be proactive and suggest that we see a specialist now. I was reading about clomid and it seems like something he should be trying as well. I can’t believe how many doctors are prescribing Androgel to couples who are obviously in an age where TTC would be a definite possibliity (we are both in our early 30s). They need to explain the side effects better.
Thank you for all of your thoughts and prayers, they mean a lot to me. This is such a private struggle and it really helps to have a place to hear the experience of others.
Post # 11
i work at a fertility clinic and this happens all the time. it will recover just give it a few months to get back to normal counts!
Post # 12
Omg…. I thought we were the only ones….
my heart is completely broken…. I’m so angry!
DH had some really bad side effects from low T a few months ago so he went to a urologist and was tested for low T and was prescribed the gel…. It smelt so bad that he switched to shots every other week…. When I missed My period last month I went to my obgyn to find out why and he tested me to see if I was ovulating and asked that DH be tested (SA) too… DH’s urologist just retired so he finally got an appointment today! We just found out that he’s basically been castrated these last months and who knows the overall damage…. I seriously can’t stop crying…
Post # 13
Sorry to hear about your troubles and that you are so upset. If you don’t mind me asking, what did the Dr actually do to cause damage? Perhaps you can complain to a regulatory body?
Post # 14
He knew we were TTC and still put DH on Testosterone … China recently did a study of men on Testosterone therapy and how their sperm counts were so low that you’d have a higher probability of getting someone pregnant by using a condom than while on Testosterone… And some of the study participant’s sperm counts never recovered from the therapy… DH is getting a SA this weekend… It will take a week for results… His new Doctor said it would take at least 2 months to get back to ‘normal’ (so 1 month from now minimum)…. But from what I’ve been reading there really is no gaurentee …
The doctor retired the day hE gave DH his last shot, but I am probably going to demand that he pay for any treatment required to get DH back to normal so that we can conceive… Possibly even fertility treatments if it comes to that…. It should be covered by malpractice insurance…
The frustrating part is there are other treatments for Low T while TTC but the Doctor never gave DH any options or warned him that he’d basically be castrated during the therapy…