Post # 1
Thought I might get opinions on this from Bees who have gone through something similar…I recently was at a health fair and there was a lady from a spine/brain place.
I have really bad scoliosis and she said they have had good outcomes with surgery. However, it would be really expensive and require a week or more of recovery time and it’s not even clear if they could help me without doing x-rays and MRI.
I am hesltant to spend money on the scans because it seems like the surgery might do more harm than good. Right now I can do everything that I want physically, and there is always a chance I could end up paralyzed. It would basically be cosmetic. I don’t have pain or anything.
Have any of you all gone through back surgery? Was it worth it?
I am scared of ending up with serious chronic pain or paralysis.
Post # 2
lauralaura123 : Was this a sales person or a doctor? Honestly a health fair is the last place I would get advice about a serious chronic illness.
From my understanding surgery is only recommended in severe cases and only after other avenues have been exhausted.
If you are concerned I would speak to your own doctor/specialist and get a referal to an orthopeadic surgeon that specialises in this.
Post # 3
j_jaye : that’s what I was thinking too…that they might be willing to put me at risk to get profit from a surgery. A doctor said I was not a good candidate for surgery about 10 years ago since two of my vertebrae were fused, but who knows how far technology had advanced since then.
I think getting an opinion independent of this center might be a good first step.
My scoliosis is pretty severe (probably the worst in my city) but thankfully has not kept me from doing anything I wish to do…except maybe dating some people I had crushes on…but that’s likely for the best anyway.
Post # 4
Uhhh I’d go to an actual doctor and not someone pitching a sales line.
If it’s that severe why wouldn’t your insurance cover it?
Post # 5
lauralaura123 : If it’s something you really want, you should totally go to an actual specialist and explore options.
You’ve said before that you don’t have insurance, right? (I think you said your family goes to your home country?) So with the risks, that might be something you need to consider. Even if you can afford the out of pocket costs on the surgery, can you afford the physical therapy after? And the treatments and equipment that might be necessary if something goes wrong during the procedure?
Post # 6
lovelyruby : I have insurance, but obviously it won’t completely cover everything. This is an actual spine and brain institute that has specialists. Definitely all good points to consider!
Post # 7
I had a 68% curve as a child and had a full spinal fusion with two titanium rods lining my whole spine on both sides. I had the surgery when I was 12 and the doctors told us that a brace would basically do nothing for me at that point and it would only continue to get worse. The surgery went really well and they were able to get my curve down to an 18%. They have made a crazy amount of improvements since then (I’m 23 now so it was 11 years ago). I almost get angry when I hear about the advancements they have made because I’m jealous lol If I were you, I would go see my regular doctor and talk to him about it and see if he can direct you to another specialst for a second opinion. I won’t even talk about my experience with it right now because it has improved so much that my experience is basically irrelevant. But I would get a second opinion on it because it is a really intense surgery and even if it would just be cosmetic, you want to make sure you’re actually a good candidate for it. And also make sure that you get a really good surgeon to has a lot of experience with this type of surgery because it is true that a lot can do wrong. My surgeon at U of M chidrens hospital did the surgery 7 or 8 times a week so my parents felt as comfortable as they could going into it. Good luck to you! And I would love to know what the future holds with you in terms of this!
Post # 8
“Spine and Brain institute” notwithstanding, I’d do your own independent due diligence and find the best specialist and hospital in your area for this kind of surgery. Then get second and third opinions.