(Closed) Too early for fertility doctor when I have endo?

posted 5 years ago in TTC
Post # 3
Member
3314 posts
Sugar bee
  • Wedding: October 2010

@BondGirl:  If I could go back and have an inkling that there was something wrong that I could be working on fixing prior to actually starting ttc, I would do so in a heartbeat.  My personal opinion would be to go ahead and see the RE now.  At the very least the RE can let you know if it’s better to get moving on or if it would be better to wait until xyz day to start.

Post # 5
Member
1572 posts
Bumble bee
  • Wedding: May 2013

What kind of doctor did you see? A reproductive endocrinologist or a gynecologist? If you aren’t alrady seeing an RE, do so. I have endo (as well as some other health issues) and it made all the difference for me. I’m not TTC yet, but have discussed it w/ my RE. I feel so much better having had that discussion a while ago and knowing what to expect. With my last lap, they did the dye test, but they also cleared out a ton of endo (including bowel adhesions – i know for the surgery they had a GI surgeon in there, not sure what all he did). Our plan will be to TTC for six months. If nothing happens, then another lap and try again. we can go for IVF or something at that point, but she suggested waiting until the 1 yr point. 

Post # 6
Member
1406 posts
Bumble bee
  • Wedding: November 2011

@BondGirl:  I have been TTC for a long time. My first GYN had me do a dye test, didn’t find any blockages. I went to a RE and they did one, still no blockages. My current RE insisted that I have lap surgery along with a dye test before doing IVF. 

There were no blockages once again but they did find severe endo…I had it on my bowels too. And they said the endo might have been the reason I haven’t ever been PG. My surgeon also mentioned having us try “naturally” for 6 months but after that, my chances of having the endo return goes up. I’m on my 5th cycle although my cycles were 23 days after the surgery…so it’s only been 3.5 months.

We are currently waiting for our next RE appt (this week) to go the IVF route. If your endo is as bad as mine, my doctors have said it WILL return and the only option to slow it down is BCPs or pregnancy….BCPs are not an option for my TTC effort. 

I’m not sure why your GYN would want you to wait another 6 months…the healing process doesn’t take that long. I’d mention that you really want to do the dye test asap, if they don’t allow it, you can try to find another doc or go to a RE…but GYNs are able to give you a referral for that procedure.

I personally wouldn’t wait…especially with your endo. Don’t let your doc tell you otherwise…my first GYN didn’t think I had endo even w/my symptoms (said I was too young) and I’ve been trying for 10 years.

Post # 7
Member
563 posts
Busy bee
  • Wedding: August 2009

How old are you?  Would you otherwise want to start TTC immediately?  If you are in your early/mid 20s I don’t think trying for 6 months is a problem.  Any later – especially if you want to have multiple children – and you might want to be more proactive.  

You also might want to talk to your ob about whether or not you are at higher risk of an ectopic pregnancy (I have absolutely no idea if your medical condition has any link whatsoever to this).  I’m just asking because at my practice they didn’t normally do an ultrasound until the 8th or 9th week of pregnancy, and I had to have an emergency ultrasound when I started bleeding at 5 weeks to rule out an ectopic.

Post # 8
Member
543 posts
Busy bee
  • Wedding: November 2012

@professorbee:   I disagree,  as a young woman with fertility issues, the sooner they find out and can treat you, the better. Why wait and potentially have a situation worsen, when it can be treated and hopefully corrected now?

At OP definitely see an RE, from my own personal experiences, obgyns are solely focused on things like preventing disease, out of control cycles, birth control etc. Its ironic that they don’t care much about reproductive health. RE’s are all about fixing what’s wrong so you can conceive, while gynos are more about managing symptoms.  Please note that this is just my personal experience,  every doctor is different. 

Post # 9
Member
6339 posts
Bee Keeper
  • Wedding: August 2014

@BondGirl:  I cannot stress how much time is of the essence when it comes to endo and TTC, particularly with stage 4 endo. If you are not on hormone treatments, which suppress it (and obviously if you’re TTC you won’t be), the endo will grow and spread; you really cannot afford to wait 6 months before investigations as a) this could impact fertility even more, and possibly result in the need for further surgery and b) it could impact on your health; it is worrying that you have bowel involvement, that is NOT something you want to chance getting worse.

As far as fertility goes, the following is a guide:

If 100 ‘normal’ women TTC for 1 year, 85 will fall pregnant

If 100 women with minimal-mild (stage 1-2) endo TTC for 1 year, 75 will fall pregnant

If 100 women with moderate endo (stage 3) TTC for 1 year, 50 will fall pregnant

If 100 women with severe endo TTC for 1 year, 26 will fall pregnant.

I say this not to worry you, but to give you the full facts; if you have severe endo, it is likely you made need help TTC, and, if you are TTC now, you NEED to see a specialist NOW, not 6 months down the line. Your fertility should improve for 3-6 months post lap, so now is the ideal time to TTC, and you need to make sure you have the best chance of falling pregnant in this time scale.

Hope that helps, and good luck xx

Post # 10
Member
3314 posts
Sugar bee
  • Wedding: October 2010

@professorbee:  I, too, disagree.  If you don’t know for sure that there is a problem, then yes, I don’t think there is any harm with trying for 6 months to see what happens, but the OP knows she has a problem and that it likely will effect how easy she gets pregnant, not to mention that letting it go without checking up on it and trying to correct it in the meantime, could lead to other, possibly lasting issues.  I haven’t researched endo to know if it can cause lasting issues, but I know that people say the same about PCOS and yet that can lead very quickly to diabetes and eventually many other things that could have affected the rest of my life if not addressed.

Post # 11
Member
6339 posts
Bee Keeper
  • Wedding: August 2014

@dodgercpkl:  Endo can cause major issues if left untreated; I know women whose organs are fused together, who’ve had to have bowel resections, who need to self-catheterise etc; they’re basically disabled, and once it gets to that stage, it is VERY difficult to treat. So you are totally right; it isn’t wise to leave it, at all. Some doctors really anger me with their flippant attitude TBH.

Post # 12
Member
3314 posts
Sugar bee
  • Wedding: October 2010

@barbie86:  I figured as much.  I have a couple of friends with endo and I know that ttc is frustrating for them.  I just hadn’t looked into the ramifications beyond ttc.  Thank you for the information!!  Drs frustrate the heck out of me at times.  So many ladies that I know with PCOS or thyroid issues get such crap treatment from their drs.

Post # 14
Member
1572 posts
Bumble bee
  • Wedding: May 2013

@BondGirl:  Good luck – I’ll be keeping you in my thoughts. Looking back on my experiences, I really wish I would have seen a RE sooner (I’d like to think I’d have less surgeries, and thus, less adhesions – which can also cause issues w/ fertility according to my dr). My last gyno saw at most 2 patients a week w/ endo, typically less than one a week or every other week. My RE sees several a day, and is significantly more up to date on research. She works in a practice w/ several other REs (and at least one NP… maybe a few gynos? idk). She understands my issues so much better, has never doubted my pain, and also understands my concerns about my fertility. I hope that you have an equally good (if not better) dr. If you live in Ohio, PM me and I can happily share my dr, although I know the practice has a waiting list, dependent on who you want to see. My friend has an appt in a few months w/ another dr, since she couldn’t get in to see mine within 6 months (once you’re a patient, you never wait long – I wait at most a week, usually same day or next).

Post # 15
Member
563 posts
Busy bee
  • Wedding: August 2009

At 30, I absolutely wouldn’t wait if you think you might have potential IF issues, and I think you are making the right decision by meeting with the RE.  Best of luck to you and your dh.

Post # 16
Member
15 posts
Newbee

I’ve also done the HSG (dye) test and there were no blockages found. I only have 1 tube left though (first lost from an ectopic pregnancy). Starting my first round of clomid this week – wish me luck!

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