Post # 1
I’m sure this has been talked about in the past, but im looking for anyone currently TTC with endo?
I’m 27 and ready to start thinking about TTC. I had a cyst a little over a year ago and when they went to remove it they found endometriosis. My dr. told me to prevent further cysts and endo I should stay on the pill and never miss a pill. She told me a cyst could develop from just one missed pill.
At the time I was not even close to ready to start talking about TTC so I didn’t ask, but now I’m wondering if I go off the pill to get pregnant, will my cysts/endo return?? Is it a vicious cycle of can’t get pregnant on the pill, can’t stop taking the pill bc then endo will worsen then can’t get pregnant because of endo?? Borderline freaking out and looking for advice/support…
I will schedule a Dr. Apt when I’m ready, but in the meantime I was just wondering if anyone else has has this conversation….
Post # 2
Hi! I am also 27 TTC and diagnosed with endometriosis. I have been dealing with endo for the past 13 years but only diagnosed the past 8 years. I wouldn’t worry too much about having to stay on the pill until you are ready to conceive. Endo does take some time to grow. It will not grow rapidly after one pill. I have been getting laproscopic surgeries almost yearly. After my surgeries I usually have 6 months without any endo symptoms. If I do not take any hormonal birth control the endo eventually grows back. It’s a shitty diagnosis. I’m sorry you are going through it. If they only found the endo on an ovarian cyst then you will probably have more time than the 6 months I had after my surgeries. My endo grows back fast and it literally makes my organs stick together. I would ask your doctor what stage endo you have, it will help you to know how invasive it has grown in your body. Best of luck when you start TTC.
Post # 3
Cysts can grow that quickly and aren’t the same as the endo.
I have endo with exploding cysts and yes, my doc told me the same thing re missing a pill, or even being an hour late and getting a new cyst. It’s miserable, so I’ve been setting my phone to alert me on the minute.
I had surgery and still, a year later, another cyst even on the pill. So I would definitely talk to your doctor to see if there is anything else you can do to mitigate the possibility.
Post # 4
Hugs to you, bee. I was diagnoised w endo about 7 years ago and also was put on the pill continuously (no breaks, no periods). It was amazing at controlling my symptoms but I definitely worried about what it meant for having a baby when the time was right. My husband and I have been very actively TTC (meaning temping, OPKs, etc) for four months.
A few good things to share (Altho I didn’t have the cysts) — first, I was shocked by how quickly my body got back into a rhythm. I ovulated the first month, and my cycles have been pretty consistent. I was terrified it would take months (painful months) to just get my cycle back so that was a huge relief. I have no idea if its right, but I credit it in part to the fact that for the last year I have been pretty disciplined about working out. I also cut out caffiene and alcohol completely when we started..
As for the pain, it’s definitely there. I had sort of forgotten. But, again the working out seems to help me manage. The hard part is it lasts through so much of my cycle.
My doctor has also been great — she felt comfortable giving us 4 months to try on our own, so if it doesn’t work this cycle (13dpo now and ready to test tomorrow…) we will do some additional testing.
hope that helps and gives you some hope!
Post # 5
Thanks girls! It’s always nice to know I’m not alone.
I scheduled an apt with my Dr. at the end of April since i think I could go crazy questioning myself and reading the Internet….. But I wasn’t ready for an appointment quite yet. I figure end of April will give me some time to emotionally prepare and get all my thoughts and questions together!!
Good luck Meredith80, I hope you get some good news soon!!!
Post # 6
i have the same.. i had lap 2 years ago and am scared to go back as my surgery didnt go as planned and i ended up having emergency blood transfusion… i am always in pain and i didnt go on the pill as advised… so now inh extra pain.. ive decided to put up with it until next year when we plan on TTC.