Post # 1
Hoping to start TTC in 2019, but having epilepsy may complicate it. I take lamictal for my seizures, which is a category C drug. My neuro mentioned having an EEG to decide if coming off my meds is possible. However, I’ve never had an abnormal EEG, even when I was unmedicated. I don’t really think another normal EEG would be a good indicator that I could stop my meds. It’s been over 3 years since my last seizure, but everytime I do have one, they last 5+ minutes and I end up hospitalized. Given the severity of my seizures, I wouldn’t feel comfortable making the 30 minute drive to work without my medication. I also live in a state that enforces a 6 month driving ban for every seizure.
All of this is making me lean towards continuing my medication during pregnancy. It’s one of the safest anticonvulsants for pregnancy, just a slight increase in risk of cleft palate during the 1st trimester. I’m already taking folic acid daily just in case. Anyone else take lamictal during pregnancy? Did it cause any complications? Did your doctors try to pressure you to stop or change medications? I don’t want to mess with something that’s working for me and worry that a seizure would be more harmful to the baby than my medication.
ETA: not looking for medical advice. I know the risks and have pretty much made up my mind. I’m just looking to see how things worked out for any other bees facing similar situations.
Post # 2
if you are in the US, call the infant risk hotline. they can give you more information related to taking the med while pregnant.
Post # 3
Talk to your doctor. They are the only ones who can really advise you.
Its you’re decision though as to how much risk you’re willing to take
Post # 4
Sounds like a great resource! I’m pretty well educated on the risks, so I’m mostly interested in hearing about the experiences of other bees in similar situations.
Post # 5
i guess the name is deceiving. they do help pregnant and breast feeding women know if something is safe or not to take. but they can also provide you with information if any studies have been done. they may also have other resources for you to find out about other women who have taken the drug while pregnant. they are very knowledgeable there.
Post # 6
Currently pregnant and taking lamictal. Dr said it was fine and I haven’t had anything out of the ordinary at my ultrasounds.
I think the risks of not taking it have outweighed the negatives in my case. Dr was pretty adamant I keep taking it so I didn’t stop. I have placenta previa but there’s no indication it has anything to do with medications.
Post # 7
I don’t have personal experience with epilepsy other than my dog having it and some friends having it. But I just wanted to say that if I was in your position, I would absolutely stay on the meds that were working. The risk of getting in a car accident, falling, depriving baby of oxygen, etc from even one seizure are so much worse in my mind than a slight risk of cleft palatte.
Post # 8
I know it’s such a tough situation to be in. I had to take a class c medication for my eyes and it was a tough call for me. What was reassuring was knowing that many medications are class c not because they are inherently risky but rather there isn’t much info because no one wants to do trials on pregnant women. I’d recommend talking with an MFM, maternal fetal specialist. They specialize in these types of situations.
Post # 9
Thank you for asking this question it’s something I’ve been wondering too! I like you haven’t had a seizure in years but when I do they are bad. I think the impact they have on me is enough for me to never want to have one during pregnancy because of the potential impact it could have on the baby so I will continue taking it as well. Best of luck with TTC!