TTC with epilepsy

posted 5 months ago in TTC
Post # 2
Member
9036 posts
Buzzing Beekeeper
  • Wedding: October 2013

if you are in the US, call the infant risk hotline.  they can give you more information related to taking the med while pregnant.

Post # 3
Member
2639 posts
Sugar bee
  • Wedding: July 2011

Talk to your doctor. They are the only ones who can really advise you. 

Its you’re decision though as to how much risk you’re willing to take 

Post # 5
Member
9036 posts
Buzzing Beekeeper
  • Wedding: October 2013

mrsclaymls :  i guess the name is deceiving.  they do help pregnant and breast feeding women know if something is safe or not to take.  but they can also provide you with information if any studies have been done.  they may also have other resources for you to find out about other women who have taken the drug while pregnant.  they are very knowledgeable there.

Post # 6
Member
1313 posts
Bumble bee
  • Wedding: October 2017

Currently pregnant and taking lamictal. Dr said it was fine and I haven’t had anything out of the ordinary at my ultrasounds. 

I think the risks of not taking it have outweighed the negatives in my case. Dr was pretty adamant I keep taking it so I didn’t stop. I have placenta previa but there’s no indication it has anything to do with medications.

Post # 7
Member
1676 posts
Bumble bee
  • Wedding: July 2015

I don’t have personal experience with epilepsy other than my dog having it and some friends having it.  But I just wanted to say that if I was in your position, I would absolutely stay on the meds that were working.  The risk of getting in a car accident, falling, depriving baby of oxygen, etc from even one seizure are so much worse in my mind than a slight risk of cleft palatte.  

Post # 8
Member
153 posts
Blushing bee

I know it’s such a tough situation to be in. I had to take a class c medication for my eyes and it was a tough call for me. What was reassuring was knowing that many medications are class c not because they are inherently risky but rather there isn’t much info because no one wants to do trials on pregnant women.  I’d recommend talking with an MFM, maternal fetal specialist. They specialize in these types of situations.

Post # 9
Member
739 posts
Busy bee
  • Wedding: June 2019

Thank you for asking this question it’s something I’ve been wondering too! I like you haven’t had a seizure in years but when I do they are bad. I think the impact they have on me is enough for me to never want to have one during pregnancy because of the potential impact it could have on the baby so I will continue taking it as well. Best of luck with TTC!

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