- 7 years ago
- Wedding: June 2017
Hey ladies…I wrote a post a week ago about some problems I was having. If I do this right, you can find it her ( In a lot of pain…kind of scared…). Here is an update…
I got my bloodwork back today, and it is clean…no RA, no lupus, etc. My rheumatologist is now going to explore a possible connective tissue disease…so she wants to put me on Prednisone for a month (starting at 20 mg the first week and tapering me off 5 mg each week) to see how I respond to know what our next step is. Don’t get me wrong, I’m glad I don’t have RA or Lupus, but it’s so frustrating to be in all this pain and not understand the cause.
This may sound stupid, but I’ve lost about 33 pounds and I had a slight panic attack at the thought of gaining weight on the Prednisone. I know it has horrible side effects, but that’s the one that worries me the most. I would totally not be in a great place mentally if I put on weight.
The other problem I’m having is that so many people in my life are screaming, “No, don’t take the Prednisone!!! It’s totally going to screw you up!!!” My one sister even asked why they aren’t just giving me cortizone. I said, “ummm, are they going to inject me in every single joint? And hello! That’s a steroid, too.” I explained to her that I can’t live with this pain everyday of my life and I need to give my doctor a chance to make a diagnosis. I will confirm it with a second opinion if I feel the need. I just really got no support today from my family…my Fiance has been great and so has his mom who is a nurse…she assured me that the dose was low enough and that it was a short enough period of time that I shoulld be just fine. I have just been crying all day because some of the people in my life have just been so unsupportive, and they are the ones who told me to make sure I let them know about the results.