Post # 1
Update to my original post: http://boards.weddingbee.com/topic/loss-later-in-pregnancy#axzz2mRRbrGhz
First of all, thank you so so much to each and every bee who reached out to me in a comment or private message with your support. It has truly been uplifting the past two weeks to receive your messages of love. We really do appreciate it.
We visited another hospital for a second opinion today. Unfortunately, the news was worse than before. This time, being a bit farther along, the doctor was clearly able to see a sizeable meningomyelocele, the most severe type of spina bifida, where a very large sac of spinal cord and tissue are outside the body. In addition, the spine is splayed beginning around the top lumbar vertebrae, meaning the vertebrae themselves are split from the spinal cord.
Most concerning of all is that after 2+ hours, the doctor was unable to find the baby’s cerebellum. This is the part of the brain that controls motor skills and some cognitive function. This, combined with the severity of the spinal defects, makes for the poorest quality of life outcome, if she were to survive the stress of birth.
We are moving forward with tomorrow’s MRI and testing, as well as a meeting with a neonatologist. However, we have all but lost all optimism and hope at this time.
[Post moderated for self promotion]
Beyond that, please continue your positive thinking and well wishes as we navigate this difficult week.
Post # 3
I am so sorry this is happening to such a great couple. I dont have anything but prayers and thoughts to offer you at this time but i will continue to pray for your baby, to pray for you and your husband and also to think of you. Not a day has passed where i havent thought of you or your situation even though i dont even know you. I couldnt imagine being in your shoes and i hope that whatever the outcome, you and Darling Husband have a safe journey and know that your baby loves you xx
Post # 4
@OldMrsMcDonald: I’m sorry, I wish I had flier miles or hotel points. I don’t have any cards that do that. 🙁 All I can do is continue to keep you and your family in my thoughts and prayers. This is beyond devastating to hear. This most amazing part of WB is that when one of us hurts, we all hurt. We love you and we don’t even know you IRL. I feel like I’ve traveled with you from your journey of TTC, BFP and now. I hope that you get more definitive answers so that you can make the most informed decision possible. Love, hope and peace to your family. xoxo
Post # 5
Oh hun, I’m so sorry. If it’s OK, I’ll put you all in my prayers.
Post # 6
@OldMrsMcDonald: I can’t say anything that hasn’t already been said but want you to know you’re in my prayers and if I could help with the points or miles I would! You are incredible parents to that little one. I hope you find peace… xo.
Post # 7
@OldMrsMcDonald: Oh honey I don’t even know what to say. I’m so, so sorry.
Post # 8
I’m so sorry. You and your family are defintely in my prayers.
Post # 9
@OldMrsMcDonald: Oh no, I’m so sorry – I wish I had miles or points that I could donate to you.. I hope there are some traveling bees that have some stocked up! I can’t even imagine what you’re going through, I’m praying for you and your husband to have the strength to lean on each other during this time and with the decisions that will need to be made. *hugs*
Post # 10
@OldMrsMcDonald: Oh, my gosh. I am so deeply sorry. I don’t have any miles/points to give but I am sending my thoughts your way.
Post # 11
@bklynbridetobe: Nope– we can’t be choosy. Anything helps.
Post # 12
I am so sorry. I wish I had some miles to give!
But this is a VERY giving and loving community. No one would fault for you for asking for money, either. I’m sure you could start a gofundme.com account and go from there.
I know I would be happy to contribute. Best wishes.
Post # 13
@OldMrsMcDonald: I’m so, so sorry…it’s heartbreaking. Best wishes, you all are in my thoughts.
Post # 14
@KateByDesign: +1 to this. I would definitely be able to donate money, but don’t have any miles/points.
Post # 15
@KateByDesign: +1 I would be interested since I don’t have any hotel oy flyer miles to donate.
I am so, so sorry. My heart goes out to you and your husband and your little girl. Love you xx
Post # 16
I am so very sorry…I have no hotel points or flyer miles sadly. If you create a gofundme I will gladly donate! My thoughts are with your family.