(Closed) upsetting 20 week ultrasound. Reassurance Needed!

posted 7 years ago in Pregnancy
Post # 47
Member
1018 posts
Bumble bee
  • Wedding: July 2012

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@Mrs.H2B:  your outlook on everything is enviable. you’re very strong and I agree when you say that even the slight odd change from 1/43 to 1/76 is very good!

fingers crossed for a healthy baby and remainder of the pregnancy!

Post # 48
Member
245 posts
Helper bee
  • Wedding: June 2009

I had a 1 in 33 chance of downs with my first. We opted for a cvs and got normal results. Just to let you know you still have the odds in your favor. Good luck, I am sorry you have to dealwith this.

Post # 50
Member
394 posts
Helper bee
  • Wedding: January 2014

At my 20 week ultrasound, they found a choriod plexus cyst in my son’s head.  They told me I had a 1/30 chance of having a baby with Trisomy 18/Edwards Syndrome, which is 99% fatal to male babies. I was devastated and pretty much spent the next two weeks crying daily.  Fast forward to 24 week ultrasound and cyst was…gone. My little man was born perfect and healthy, and is now an energetic, amazing 10 year old.

I know how hard this is for you and my heart goes out to you.  Stay strong and have faith.  Prenatal testing is not perfect and is often misleading.   But at the end of the day, you will love that baby more than life itself, no matter what happens.   Huge hugs to you.

Post # 51
Member
731 posts
Busy bee
  • Wedding: June 2015

@Mrs.H2B:  I wouldn’t worry yet! looks healthy as can be 🙂

Post # 52
Member
900 posts
Busy bee
  • Wedding: July 2013 - Rock Hill Country Club, Manorville NY

I’m so sorry you’re stressed. Pregnancy is stressful enough as it is, and I really wish doctors wouldn’t bother testing for soft or hard markers for down syndrome. Let me tell you a few stories.

 

Two good friends of mine had babies who had soft markers at their 20 week scan. Their babies are 7 months and 2 1/2 and neither have DS.

A coworker of mine had several HARD markers for DS. Her son is 4 months now and does not have DS.

At my best friend’s 20 week scan they saw her son was missing his index, middle and ring finger on his right hand. This led to genetic testing and soo many different tests for her and her baby. They determined he would be severely mentally retarded and likely be deaf, dumb and blind. Her son will be 1 in May and his ONLY “problem” is his left hand. Other than that he is right on track, definitely not SMR, or deaf dumb or blind.

I know how scary this is anyway, but I’ve known more people than this who have had soft and hard markers in US and none of their children have DS or any other disability for that matter.

I also don’t understand why they test for DS at all. It’s far from the worst thing in the world for your child to be born with. Most people with DS live normal, extremely happy lives, as do their families.

Post # 53
Member
826 posts
Busy bee
  • Wedding: June 2012

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@Mrs.H2B:  Just wanted to let you know that my risk came back at 1/76 as well. My Verifi (same as Harmony/maternT21) came back negative. I now have a happy, healthy 3 month old. 1/76 sounds high still (or at least it did to me), but it is really a low risk in the overall scheme of things!

 

Post # 55
Member
3028 posts
Sugar bee
  • Wedding: June 2013

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@tampalove35:  +1

 

Not sure where in Canada you are, but I am 1 hr outside of Windsor in Michigan and I paid $200 for it.  I had a positive quad screen and my DS chances were close to yours (I forgot the exact number) at around 20 weeks for DS and then had the materniT21 with a 99.1% negetive result and a normal follow up u/s.  I had a healthy baby boy 11 days ago 🙂  I wish you well, it sounds like you and your husband have a great relationship and am on the same page here…that’s really important.  I contacted someone who someone on WB recommended to talk to about this, and asked her questions about what it was like to have a DS child and she reassured me that IF he had DS he would still be a normal, happy child!


Sending positive vibes your way. 

 


 

Post # 56
Member
75 posts
Worker bee
  • Wedding: September 2011

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@Mrs.H2B:  

Down’s can happen in any age group. It’s a huge misconception that being at a low risk age means no risk. While older women have a higher their risk for DS , most infants with DS are born to women less than 35. In fact 80% of babies with DS are born to women less than 35  because they are having way more babies than the above 35 crowd. It’s just statistics

It seems like your findings are soft and your risk is statistally looking better with the additional tests you’ve had. Things will probably be totally fine, but I understand how nervewracking it can be. My sister’s friend had a positive screen with #’s worse than yours and there was lots of stress all around. Everything turned out fine and the baby doesn’t have DS. Try and relax the best you can and enjoy the pregnancy!

Post # 58
Member
980 posts
Busy bee
  • Wedding: June 2012

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@Mrs.H2B:  I can’t imagine how stressful this is, and I’ll keep you in my thoughts and prayers. I am really inspired by your willingness to accept, love and raise a baby with Downs. You will surely be an amazing mother.

Post # 59
Member
810 posts
Busy bee
  • Wedding: October 2013

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@Mrs.H2B:  big hugs and warm wishes for you, mama. I can’t imagine what you’re going through, but all stress, worry, ups and downs are understandable to say the least. FX the time passes quickly and you get happy results!!

Post # 60
Member
3125 posts
Sugar bee
  • Wedding: December 2017

T&P. I hope the next few weeks pass quickly and you get some peace.

Post # 61
Member
690 posts
Busy bee
  • Wedding: August 2012

I too am the type of person that would want to know either way. Good luck.

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