Post # 1
I am writing this because I am scared and driving myself crazy and need advice or words of encouragement.
The other day I went to the doctor for a pap smear and pelvic exam as I was experiencing hardness and bloating in my lower abdomen, also discomfort when I needed to urinate. During my exam the doctor said I have a canteloupe sized cyst on my ovary and will need surgery to have it removed. She told me to come back for an ultrasound the next day. I came back for the ultrasound and it showed that it was actually my uterus not my ovaries. She mentioned uterine fibroids. She did a biospy which she sent in and I still have not heard back on those results. But she referred me to a specialist for a consultation to see if I need surgery. I have been informed that I can’t get an appointment with the gynocological surgeon for 2 1/2 weeks for the consultation! I called my doctor back and asked if it is for sure a fibroid. She said they couldn’t tell from the ultrasound all they can tell is that its a “sickness on the uterus”, which sounds scary to me as I don’t know exactly for sure whats wrong. I really dont have many sympton other than the mild bloating that I can only really notice when I am laying down. When I am sitting or standing I feel perfectly fine.
The main reason why I am freaking out is I am getting married in 58 days! If I need to have surgery, I am afraid I won’t have enough time to recover after the surgery.
Has anyone experienced this before? Can you let me know how long your recovery was after the surgery or if you needed surgery??
I should mention that I am 24 year olds with no significant sicknesses. W/ normal regular periods.
Post # 2
Don’t be scared. Fibroids are a common occurence among many women. Surgery can involve laproscopic removal or embolization. Recovery time is anywhere from a few weeks to about 6 weeks or more, with very gradual increasing of physical activity.
I had them on my uterus and had a laproscopic procedure. I was kept in the hospital overnight and released the following afternoon. I had a lot of pain for the first week (bed rest, with pain pump, no physical activity), was walking around in llimited amounts the second week and returned to work (albeit very exhausted most days) by the third week. The fibroids were large and were pushing against my bladder. I looked about 4 months pregnant
The specialist will give you an idea how intensive surgery will be for your case. If it were me, I would at least ask your doctor to refer you to another specialist that can see you sooner. The best thing to do is put your HEALTH in the priority. Ask the specialist a ton of questions (write a ist out, if you have to-length of procedure, downtime, post-op examinations, etc) and please know that lots of women have had some sort of procedure to have them removed. Good luck
Post # 3
Last July I went to the ER for some unrelated intestinal distress and the doc became alarmed by the mass in my stomach. She referred me to a GYN who informed me I had several huge fibroids. Over the next several months I had many procedures culminating in a hysterectomy in December. Don’t be alarmed by that. I do not think a hysterectomy was REQUIRED but it was the best option for me at 48 years of age with 4 children and no desire to have any more. I had a PAP which showed some endometrial cells so I had an endometrial biopsy (all clear). I then had a vaginal ultrasound and later an MRI (nothing alarming on there – just about a dozen fibroids). Lastly I had injections of Lupron to halt my periods and then iron infusions at the cancer institute before my hemoglobin levels were high enough for surgery. Finally I had the surgery. I found it to be no big deal although I hear some women are largely affected by it. I basically had the surgery and after a few weeks, never thought about my uterus or periods again…lol. I was driving in 3 days (although not far) and 2 weeks later, it was as if it never happened. Very little pain…very little discomfort and tremendous relief on the bladder which I didn’t realize was affected until it was UNaffected. My energy levels are off the hook like WOW!! now.
You’re going to worry and nothing anyone says will make you not worry. All those biopsies, etc… are pretty scary but remember to have a little celebration each and every time you get the ALL CLEAR and move on to the next test. You’re only 24 so I think the major concern is getting rid of that cantaloupe and keeping the uterus intact. They’ve made so many, many advances in the field I’m sure they’ll do their best. My sister’s surgery in 2001 was such a seriously MAJOR deal compared to mine (6 week recovery compared to about 6 DAYS) – they’ve come that far in just this little amount of time.
Ask questions, ask questions, ask questions. If they don’t give you concise replies (they do that sometimes when you’re a youngin), consider switching to a doc who takes you seriously. Keep us posted so we can worry with you.
Post # 4
I had also gone into the ER for an unrelated illness when doctors found the mass on my uterus. 8 cm fibroid. I had to go into surgery immediately for my first issue which was laproscopic surgery with 2 week recovery. Then went back a month later for the fibroid. However due to its size and position I basically had to have c-section surgery to remove it, which took me out for 8 weeks.
Post # 5
Also just wanted to reiterate what PPs have said – fibroids are VERY common and usually nothing to worry about. My doctor was very open to me deciding when I would come back for surgery despite my fibroid being bit of a health risk due to its position. As long as I didn’t leave it for months and months. She was more concerned about me possibly getting pregnant if I left it too long. We werent trying or anything but because I’m in a committed relationship I had 3 different doctors remind me to use protection until I had surgery. They even pulled my SO aside and talked to him about it. There just wasn’t enough space left in there. I’m sure your doctor will work around your wedding but will probably lecture you about not getting pregnant until then.
Post # 6
Thank you all for your feedback!
I have considered looking into another specialist, but right now I am scheduled at Mayo Clinc which is the best place to go in the state and probably even the country. I know I’ll recieve great service there. Although, there is another specialist in the area which I plan on calling today to see if they can ge me in any sooner. I just want to get all this taken care of!
I feel like if this fibroid really is the size of a canteloup my belly would be a lot bigger. It doesnt really look any different. It especially doesnt look like I am 4 months pregnant! Or even pregnant at all! So hopefully it is not as big as the doctor thought; when she was doing the pelvic exam and thought it was a cyst.