Post # 1
Evening bees. It’s been awhile since I’ve participated on the boards. July has been an insanzy month for me. I’ve been working a lot. I had my engagement BBQ over the weekend. Now I’m preparing to go to a wedding this upcoming weekend. Just little things here and there have kept me going.
Anyways, Monday morning, I got up to use the bathroom. I noticed that I had a bit of burning during urination. My pee was cloudy. Yadda-yadda. I figured it must be another UTI – which would make my third one in almost two years. Yikes, right?
I made an appointment with family planning because I have no insurance and little money though I am working. I couldn’t get an appointment until today so I bought cystex and cranberry juice. I always drink water so that’s not a problem there either.
Today finally rolls around and I go to my appointment to get tested and talk to the nurse practicioner. They did the usual pee in a cup and did a pee test strip. First, the nurse was completely surprised at how clear my urine was. I told her I didn’t lie when I said I drank a lot of water. It always looks like that. That’s why I figured I had a UTI since I had clear, yet cloudy urine. Anyways, she did the test and told me to go wait out front for the nurse practioner to finish up with another patient. I get called back 5 minutes later and the NP asks me what’s going on. I tell her everything and even exaggerated that this happened before. My UTI results came back negative, yet I still ended up with a kidney infection. She told me there was nothing more she could do and she wasn’t going to give me an antibiotic because there was no signs of a UTI – aka the test came back negative. She asked me if I had insurance. I told her no so she looked at me and told me she wants to send me to LabCorp so I can get more intensive lab work done. Unfortunately, I cannot afford the lab work and she even said it’d be somewhat costly to me.
She’s trying to tell me that I may have kidney or bladder stones. I find it unlikely because 1) all I do is drink water. I can’t see how I could build up any sort of calcium anywhere. 2) This was the problem last time. They thought it was kidney stones and it ended up being an infection that went straight to my kidneys. She wanted to hear nothing of it.
Anyways, sorry for the long rant and such. I’m just at my wits end. I know that there’s something going on with my body. I also know it’s not kidney/bladder stones. I’m frustrated that she wouldn’t give me an antibiotic to see if it’d help at least. I can’t afford to go get these tests done nor can I go to another doctor or the ER. I didn’t take Cystex all day until this evening because I felt some symptoms. Now I’m feeling better. I’m, of course, drinking plenty of water. I’ll drink more cranberry juice tonight. I understand that these are not cures nor will it help me get better. I’m just trying to keep the infection from spreading as much as possible until I can figure SOMETHING out.
Does anyone have any advice or has gone through the same thing? James read on the internet that it MAY be possible interstital cystits – which is often confused as an UTI.
I’d really appreciate any sort of feedback. Thanks in advance!
Post # 3
i’d bet the tests are coming back negative because you are diluting the things they look for.
Post # 4
@helenberrycrunch: That’s what my thoughts were too. I would have much rather gone in early in the morning so I wasn’t drinking so much water to begin with. I tried not to, but I had to drink something before going in to be able to use the bathroom there.
Do you have any suggestions? Maybe I can try urgent care early in the morning or take in a sample from my morning urine?
Post # 5
@DesireeAnne: I’ve helped another bee who has iC and I was even able to refer her to my urologist who saved my life (figuratively) when I was suffering from it. If you don’t have an infection, yet have burning when you pee, you probably have interstitial cystitis. You need a bladder biopsy to confirm but that’s what it sounds like to me.
I had the exact same symptoms: What I thought were repeated UTIs, took antibiotics and nothing worked. My doctor did bladder instillations and I was completely cured. I don’t think oral medication is worth a crap. But changing your diet will help a lot.
Anyway, Google IC and see if your symptoms match. Then go see a urologist, not a GP or other doctor. PM me if you want more info.
Post # 6
@PutABirdOnIt: I sent you a PM. 🙂
Post # 8
This sound similar to what happened to me but they didn’t check for stones.
Post # 9
They look for red blood cells to confirm injury and white blood cells to confirm infection. They do it by number of cells of that type seen in a small fraction of the sample, to the best of my knowledge, so it might be possible that your urine was extremely dilute. (On the other hand, I also drink a motherloving crap-ton of water and I still get cell counts in mine.) Did they tell you whether there were either kind of cells?
(I have kidney stones. I’ve had four urine tests in the last two years, and every single time they come back positive for red blood cells, negative for white. I drink a ton of water every day to try and keep them from forming, not that it does any good–I formed an eight cm stone while drinking enough water that I have to pee every hour or two.)
Did they do the kidney percussion? It’s where they thump on your back to see if there’s radiating pain consistent with a kidney infection.
Also, healthcare providers tend to have a sixth sense about exaggeration, so just be straight with them. If they get the sense you’re not being straight with them, they’ll be less inclined to help you.
And, just to let you know–this is NOT medical advice–kidney infections can sometimes resolve on their own. One of my friends has a health condition where she gets chronic repeat kidney infections, and she told me that when I started worrying about peeing blood.
Post # 10
I had the same issue and after several trips to the urologist we figured out it was an inflammation issue. Maybe you should check into that.
Post # 11
I have IC too. I am only ‘soft’ diagnosed by my FP though and see a urologist next month.
Its agonizing hearing ‘tests are negative’ when you just wish it was a simple bladder infection and you could do a course of antibiotics and be done with it.
In the meantime I’ve been trying to stay away from foods/substances that irritate IC.
I also found this drink named ALO that has chunks of aloe vera in it. I tried it one day and noticed that the burning and urge to pee went away. I tried another the next day and presto, they were gone again! I totally don’t know if its a fluke or whatever but at }$ 2 bucks a day, and its a yummy drink thats good for you, why not?
Good luck and best wishes for your health 🙂
Post # 12
@kristophine: No exaggeration on my part except for how this happened before. I barely have any symptoms. Just the burning sensation and cloudy urine. Trust me, I hate doctors. I don’t go in for stupid things. I just know there’s something wrong with my body.
@ama0219: I’m thinking it’s an inflammation problem.
@Oneeleven: Thanks for the tips!! 🙂
Post # 13
Update: I work up this morning and had the urge to go to the bathroom. I was so uncomfortable and I felt my urethra burning in an odd way. It’s not really painful, just uncomfortable. So, I finally was able to go to the bathroom and I rarely had anything in me since I had woken up during the night to go to the bathroom. Afterwards, I still had the sensation and couldn’t get rid of it. I googled the symptoms again and a lot of people said that once they started drinking water and/or cranberry juice, it went away. I gave it a try and sure enough, I felt better.