- AB Bride
- 4 years ago
- Wedding: January 2011
I wondering if I’ll ever be able to work a fairly traditional job again. I get flareups, and I never know when they will happen. I can go a month feeling great, then one day I need to sleep for more than 15 hours, another day I need to hang around an ER after taking attack meds, another time I need to actually go to the ER, and a week the symptoms are so bad I’m useless for a few hours and if I had to go to work I would have to come in late, as it would be too difficult to travel unless I had someone else drive me, so taking a cab I guess.
I can’t just push through certain symptoms either, as even if they feel minor they can become life threatening quickly.
Does anyone else deal with a serious illness like this and work something fairly traditional ie. not from home, not contract.
Part time would probably be ideal for me, where I can work when I feel well and stay home on days I don’t so the hours average out to part time. I’ve never heard of something like that though where it’s ok if you’re gone for a week and do full time hours the next, without advance notice.