(Closed) wow.

posted 8 years ago in Babies
Post # 3
7082 posts
Busy Beekeeper
  • Wedding: July 2009

I don’t have anyone close to me with a colostomy, but I’ve taken care of lots of patients with Crohn’s and they’ve adapted very well to their challenges– and these are by and large teens!

Have you read Kitchen Table Wisdom by Naomi Remen?  She’s a doctor with Crohn’s Disease, and has a great perspective to share.

As for babies– sometimes, we don’t get a ton of choice on when they make their appearance.  I know Cecilia was conceived before we were “ready”, but luckily, you have 9 months of incubation time to adjust and get ready!  Hopefully by then your husband will have recovered and will be ready for whatever comes!

As a side note, one of my bosses had her colostomy and was back to work in less time than anticipated… and she even had complications.  I hope things go really smoothly for your husband, and early congratulations on your pregnancy!

Post # 4
617 posts
Busy bee
  • Wedding: November 2010

A line is a line!!!!! I say congrats!!!!! I would test again in a day or so and make an appt with your doc to be sure, but congrats!!! Actually, this may very well give him something positive to look forward to.

For the other part, I can tell you that throughout nursing school I’ve encountered a lot of people that have colostomies (or stomas in general) so I may be able to help a little. There are little tricks to learn and it will take him a while to get use to it. You will also need to get very use to it as you will have to learn colostomy care. The important thing is to make sure that he is encouraged (not forced) to look at it and help with the care of it. Initially, the nurses will do a lot of the care for it, but make sure they’re explaining what they’re doing every time they go near it and that you encourage him to look at it and help when he’s ready. Like I said, it is going to be a big adjustment for him, and there may be some associated body image issues, but with patience and understanding, you can handle this. 

Here are a couple little tricks I can help you with:

Keep an extra bag clip (if the system he has uses them) with you at all times so if you’re out somewhere and need to empty his bag and something happens to it (because the clips are just little plastic things) you’re ready. In the beginning the stools will be watery and loose, and to me a little more foul smelling, a way to combat this is to put a tiny bit of mouthwash on a little torn piece of toilet paper in the bag. (Docs don’t always like that advice, but they don’t have a stoma, do they). 

I hope that helped a little. Not trying to scare you at all, but I think it’s important for you and your husband to be prepared!!! You have two big life events up ahead of you and you CAN handle them together!!! Be patient, and kind, and understanding. Good luck!

Post # 5
581 posts
Busy bee

I’ll be holding good thoughts in my heart  for your husband and you.  Babies are a blessing, and I’m sure your future little one with bring such joy to focus on.  Wishing you the best!

Post # 7
2856 posts
Sugar bee
  • Wedding: September 2009

@Colors – I absolutely hate those line tests. One line tends to always be lighter than the other. I used the digital test and it flat out said I was Pregnant. It took the guess work right out of it. That was enough for me 🙂

I have never known or dealt with someone who was suffering from Crohn’s disease but I do with you and your hubby the best!

Good luck!

Post # 8
14186 posts
Honey Beekeeper
  • Wedding: June 2009

I had a boss who had a colostomy and he lived a perfectly normal life. In fact, I only found out about it about 4 years after I’d worked there! It was never obvious. It’ll be tough being pregnant while he is recovering–if you have anyone that can be an extra support system, rely on that! If anything, I think it could be good for your husband’s recovery, looking forward to a baby.

Post # 9
256 posts
Helper bee
  • Wedding: April 2009

@colors – although I do not know anyone recently with a colostomy, I do know that children appear when they are least expected and at times that seem to us often times to be inconvenient, but it seems that both you and your hubby are willing and welcome to the possibility of being parents. i would think of it as a blessing for you now in the midst of what is not such a great moment, so definitely take another test and confirm, but you have the entire pregnancy to prepare. ours was not expected either and will be a welcome addition to the family.  early congratulations on your pregnancy!

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